by johannasr2 | Jun 11, 2026 | Disability, Family, Fibromyalgia, My Illness
It was one of those days when it was $hitty to be disabled. Not because I thought it was $hitty but because others just didn’t want to understand what it’s like to have an invisible disability. I keep on inviting my brother and his girlfriend to our home for dinner...
by johannasr2 | Jan 16, 2025 | Education, Fibromyalgia, Health Care, My Illness, Psychology
https://www.nytimes.com/2025/01/12/magazine/chronic-pain.html?smid=url-share
by johannasr2 | Jan 9, 2025 | Change, Clarity, Communication, Fibromyalgia, My Illness
I saw the ad somewhere and quickly wrote down the information. Horse Back Riding and a phone number. It took a month for me to start texting and asking questions about the owner’s format. I wanted to know all about them and how they offered rides to people. It’s...
by johannasr2 | Jun 21, 2024 | Change, Fibromyalgia, Health Care, My Illness
To the Emergency Department Management Team: I want you to know that I came to the Emergency Department because I desperately need a diagnosis to explain my extreme fatigue. I have fibromyalgia and I am experienced with exhaustion, how it happens and how to prevent...
by johannasr2 | May 29, 2024 | Change, Family, Fibromyalgia, My Illness, Psychology
I learned to grieve early. But not about me. I learned to grieve about relationships, losing them. And the worst, losing people I loved. Sometimes, as difficult, was losing people I hated. I quickly lost people that I had spent lifetimes with. We all changed; we went...
by johannasr2 | Feb 16, 2024 | Fibromyalgia, Mental Illness, My Illness, Psychology
February 16, 2024 I often wonder that our life energy is a finite resource. You are born with an amount of energy, and you cannot have more, no matter how you live. You can definitely get less, but never more. It makes me think that I must be careful with the energy...
